As I reflect on the last few weeks, those are the words that came to mind.

No one can possibly relay what being a mother is really like, until you are in it. Yes, people tell you how amazing it is and they may sprinkle in a few of the trials and tribulations along the way. 

It’s funny how I was so ready to be done with 2024, but at the same time am not ready to take on 2025.

It was about a year and a half ago that Caleb was about the age that we thought he could tolerate a Cardiac MRI without sedation. He did amazing, partly because of him, but also because of the amazing staff that helped him to not be scared.

We are approaching six years of Caleb and Dunky being diagnosed with Duchenne Muscular Dystrophy.

There is no shame in realizing you need a mental pause or re-set. It took me months to finally “cave” and admit I needed some time for myself.

Although I’m not completely fulfilling my 2023 goal of monthly blogs, I’m giving myself grace and not grief.

I have a goal in 2023 to have a blog post at least once a month, so stay tuned!

It’s funny that it’s been 11 months since I’ve officially posted a blog. I learned through my boys being diagnosed with Duchenne Muscular Dystrophy that writing is therapeutic for me.

There is so much good, but Duchenne sucks.  We could not do this alone, but together we can #kickduchenne.

What if instead we embraced Duchenne for what it is and all that comes with it and just lived in the present moment no matter what that brings.

“How was Halloween?” My response, “Hard.” Just when you least expect it, Duchenne hits you in the face.

It’s been too long since I’ve sat down to write about my boys and all the feelings that come with those cute, little, adorable, naughty and hilarious stinkers that suffer from this awful progressive muscular disease.

Yep, it’s true.  I, Sarah Kasner, am the one who gave Caleb & Duncan Duchenne Muscular Dystrophy.  I am the carrier, and I had no flipping idea.

Celebrating birthdays for a child with Duchenne is bittersweet.  Caleb can’t wait to turn 5 tomorrow, he has been talking about it for months and he has this idea that you always get the same number of presents as the age you are. 

Yes, YOU! If you are reading this, you have likely supported the Kasners Kick Duchenne and the Kasner Family in some way or another and it’s our time to step back and say THANK YOU to everyone. 

We recently finished our 6-week session of serial casting and Caleb killed it. It wasn’t easy for us as parents, but he adjusted like the strong-willed person that he is. 

“No matter what you step in, keep walking along and singing your song……because it’s all good.”

It was finally time for our long-awaited appointment at Gillette in the Gait Lab and Movement Disorder Clinic.

And all great things must come to an end. I’m not sure I actually believe that coined phrase, but this summer has a been a great one that has come to an end whether we want it to or not.