This blog is a journal of the journey of raising two boys with Duchenne Muscular Dystrophy.
Happy Baby Tears
My yoga teacher tonight talked about the importance of Happy Baby pose as it signifies the simplicity of life and the awesome feelings a baby has when in that pose.
Growing Pains
I have loads and loads of literature and information on Cerebral Palsy (CP), but I am still learning everyday about what it really means to have a child with CP.
Becoming Comfortable with the Unknown
The day after our long, but "at-peace" day at Children’s (see 1-25-17 entry), I received a call from the Neurologist explaining that Caleb's MRI in conjunction with his observation of Caleb’s function caused him to lose sleep.
Long Day at Children's
After 9 hours at Children’s Hospital today with Caleb, I walked through the door and told Dan I felt good. I could barely see straight and was exhausted beyond belief, but I was happy about how the day went. That says a lot as my expectations are quite high as it relates to Caleb’s medical care.
Do Your Job!
On December 15th, Dan and I decided another MRI was in order. The Neurologist told us to think about it when we left his clinic since he wasn’t overly impressed with the quality of the first one.
Thoughts Before Reality Starts
And here ends my medical leave. I sat down tonight to write something meaningful, profound and insightful, but all I really want to say is I relished in every moment with my kids today, especially Caleb.
Brief Birth Story
However, as we go through these medical challenges, that birth story becomes more relevant than I ever thought it would be. So here is my attempt to capture that story in a summarized version.
Auntie Krissy Comes to Share Her Love
It was just over three years ago that Auntie Krissy booked a last minute flight to come meet baby Caleb and provide our family support during the time that Caleb was in the NICU.
Blog Post Does a 180
My sister came to help out the Kasner Household and the past 3 days were filled with many memories.
Neurology - Take Two
In an effort to assist in Caleb’s coordination of care, I wanted to see a Neurologist at Children’s, where Caleb’s Cardiologist is whom we are very happy with.
Back to my "Job" after Vacation
Today I spent the better part of the day doing my “job” which is more than being Caleb’s mom, it’s being Caleb’s advocate.
Big Day at School
Caleb wasn't even two when he could say the ABC's, count past 20 and start recognizing words.
With Diagnosis Comes More Questions
They told us it would take 4-5 weeks before we could have our follow-up appointment with Caleb's Neurologist after his MRI on Friday.
Thus Far in a Nutshell
Thanks for all of your support, prayers and inquiries today. As many of you know, Caleb had quite a dramatic entrance into this world three years ago.
Blog It Out
During my time away from work, I not only want to manage Caleb’s medical conditions, but manage my own emotions as it relates to this journey.