This blog is a journal of the journey of raising two boys with Duchenne Muscular Dystrophy.

Sarah Kasner Sarah Kasner

Happy Baby Tears

My yoga teacher tonight talked about the importance of Happy Baby pose as it signifies the simplicity of life and the awesome feelings a baby has when in that pose.

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Sarah Kasner Sarah Kasner

Growing Pains

I have loads and loads of literature and information on Cerebral Palsy (CP), but I am still learning everyday about what it really means to have a child with CP.

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Sarah Kasner Sarah Kasner

Becoming Comfortable with the Unknown

The day after our long, but "at-peace" day at Children’s (see 1-25-17 entry), I received a call from the Neurologist explaining that Caleb's MRI in conjunction with his observation of Caleb’s function caused him to lose sleep. 

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Sarah Kasner Sarah Kasner

Long Day at Children's

After 9 hours at Children’s Hospital today with Caleb, I walked through the door and told Dan I felt good. I could barely see straight and was exhausted beyond belief, but I was happy about how the day went. That says a lot as my expectations are quite high as it relates to Caleb’s medical care.

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Sarah Kasner Sarah Kasner

Do Your Job!

On December 15th, Dan and I decided another MRI was in order. The Neurologist told us to think about it when we left his clinic since he wasn’t overly impressed with the quality of the first one.

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Sarah Kasner Sarah Kasner

Thoughts Before Reality Starts

And here ends my medical leave. I sat down tonight to write something meaningful, profound and insightful, but all I really want to say is I relished in every moment with my kids today, especially Caleb.

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Sarah Kasner Sarah Kasner

Brief Birth Story

However, as we go through these medical challenges, that birth story becomes more relevant than I ever thought it would be. So here is my attempt to capture that story in a summarized version.

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Sarah Kasner Sarah Kasner

Auntie Krissy Comes to Share Her Love

It was just over three years ago that Auntie Krissy booked a last minute flight to come meet baby Caleb and provide our family support during the time that Caleb was in the NICU.

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Sarah Kasner Sarah Kasner

Blog Post Does a 180

My sister came to help out the Kasner Household and the past 3 days were filled with many memories.

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Sarah Kasner Sarah Kasner

Neurology - Take Two

In an effort to assist in Caleb’s coordination of care, I wanted to see a Neurologist at Children’s, where Caleb’s Cardiologist is whom we are very happy with.

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Sarah Kasner Sarah Kasner

Back to my "Job" after Vacation

Today I spent the better part of the day doing my “job” which is more than being Caleb’s mom, it’s being Caleb’s advocate.

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Sarah Kasner Sarah Kasner

Big Day at School

Caleb wasn't even two when he could say the ABC's, count past 20 and start recognizing words.


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Sarah Kasner Sarah Kasner

Thus Far in a Nutshell

Thanks for all of your support, prayers and inquiries today. As many of you know, Caleb had quite a dramatic entrance into this world three years ago.

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Sarah Kasner Sarah Kasner

Blog It Out

During my time away from work, I not only want to manage Caleb’s medical conditions, but manage my own emotions as it relates to this journey.

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