As I reflect on the last few weeks, those are the words that came to mind.

No one can possibly relay what being a mother is really like, until you are in it. Yes, people tell you how amazing it is and they may sprinkle in a few of the trials and tribulations along the way. 

It was about a year and a half ago that Caleb was about the age that we thought he could tolerate a Cardiac MRI without sedation. He did amazing, partly because of him, but also because of the amazing staff that helped him to not be scared.

We are approaching six years of Caleb and Dunky being diagnosed with Duchenne Muscular Dystrophy.

There is no shame in realizing you need a mental pause or re-set. It took me months to finally “cave” and admit I needed some time for myself.

Although I’m not completely fulfilling my 2023 goal of monthly blogs, I’m giving myself grace and not grief.

Yep, it’s true.  I, Sarah Kasner, am the one who gave Caleb & Duncan Duchenne Muscular Dystrophy.  I am the carrier, and I had no flipping idea.

Celebrating birthdays for a child with Duchenne is bittersweet.  Caleb can’t wait to turn 5 tomorrow, he has been talking about it for months and he has this idea that you always get the same number of presents as the age you are.